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Freeze Out Pediatric Scleroderma!

Raised toward our $7,500 Goal
34 Donors
Project has ended
Project ended on September 13, at 11:59 PM EDT
Project Owners


September 20, 2016

GREAT NEWS!! We have officially reached our goal of $7500 towards a new freezer for the Pediatric Scleroderma Registry, and are still climbing!!

Thank you to everyone who has generously donated and made this fundraiser a huge success!

Your donations have paved the way for future pediatric scleroderma research here at the University of Pittsburgh, and we are hopeful that our research will have a positive impact on kids living with scleroderma for years to come.  

We also extend a VERY SPECIAL THANKS to our pediatric and young adult patients who selflessly and generously donate blood samples for scleroderma research -- we could not do any of this research without YOU!

If you are still thinking about donating, It's not too late to make a BIG difference.  Please visit: to make a gift. 100% of any funds received will go directly towards the purchase of a new $15,000 ultra-low temperature freezer to store blood samples.  After we purchase the freezer, any donations will be directed toward cutting-edge research to #stopscleroderma

Our sincere gratitude,

Dr. Torok and the Pediatric Scleroderma Team


Only 4 days to go!

September 09, 2016

Dear Friends,

We have raised $6295 toward a new freezer for the Pediatric Scleroderma Registry and are only $1205 away from reaching our goal of $7500THANK YOU to everyone who has donated and shared our campaign on social media!

With just 4 days to go, we still need your help!  A donation of ANY amount will make a BIG difference. Your gift will help us develop better treatments for children like Alyssa, Carly, and Preston and minimize the impact that scleroderma has on their lives.

Please consider making a tax-deductible gift today! 

**You can also make your gift by mail by sending a check/money order (made out to the University of Pittsburgh) to:


Office of Institutional Advancement

128 North Craig Street

Pittsburgh, PA 15260

**Please write “Freeze Out Scleroderma” on the memo line of your check.**

Please continue to share #stopscleroderma and on social media.

Thanks so much for your support!

-Dr. Torok

We still need your help!

August 29, 2016

We have raised $1235 out of our $7500 goal!  Thanks so much to everyone who has generously donated! 

With just 15 days to go, we still need your help to freeze out scleroderma!  

You can now read Preston's story on the main page and learn how he has overcome challenges faced by kids with scleroderma.  With your generous support, our hope is to help all kids with scleroderma to overcome these challenges and enjoy a life filled with activities they love, including sports, art, and music.

Please continue to share #STOPSCLERODERMA and our website on social media!


August 11, 2016

We have officially crossed the $1000 mark and are more than 10% of the way towards our goal of $7500!

If you would like to share your story on this site, please contact Kaila (Dr. Torok’s research coordinator) at

Please continue to share #STOPSCLERODERMA and our website on social media!

Thank you for your generosity and spreading the word to FREEZE OUT pediatric scleroderma!


Thank you!

July 28, 2016

A big thanks to those who have already donated to FREEZE OUT Pediatric Scleroderma!  We are well on our way to meeting our $7500 goal!

You can now read Carly's story on the main page.  There are many kids like Carly and Alyssa living with scleroderma, and 100% of your donation will help us develop better treatments which will lead to faster recoveries so that they can focus on being kids. Thanks for joining us to #stopscleroderma!  

Choose a giving level



It's getting cold! Many kids with scleroderma experience Raynaud's phenomenon and are very sensitive to cold temperatures. Your contribution will help our efforts to to find better treatments and improve their quality of life.



Our specimens need to stay frosty to remain stable for research. Your donation will help us collect more specimens that are essential for innovative pediatric scleroderma research.



A single snowflake often signals more is on the way! Your contribution will help us study how the smallest changes in the immune system signal improvement or flares of scleroderma.



It takes many snowflakes to make a flurry! Scleroderma is a complex condition with many forms and symptoms. Your contribution will help us gain understanding of these complexities and develop new treatments.



Here in Pittsburgh, many kids enjoy a good snowball fight. Kids with scleroderma have immune systems in constant battle with the disease. Your contribution will help us discover indicators of flares so that we can treat aggressively and minimize symptoms.



There are not many things colder than an icicle, except the freezer we hope to purchase! This special freezer has a temperature of -80 degrees Celsius (-112 degrees Fahrenheit), which is close to the coldest temperature ever recorded on earth. This temperature keeps our precious blood samples stable for cutting-edge research.



Snowstorms often arrive without warning and the same is true for pediatric-onset scleroderma. The Pediatric Scleroderma Registry also collects blood from healthy individuals to understand differences in the blood and immune system. Your contribution will help us to develop new methods of diagnosing scleroderma faster and easier.



Blizzards make a BIG impact, and so can you! Contributions at this level will support our efforts to #stopscleroderma and have a positive impact on the lives of many kids for years to come!

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